Musings of a Marfan Mom

July 30, 2010
by marfmom
5 Comments

Friday Favorites

I had this really cool Friday Favorites post planned with articles by some of my favorite bloggers. However, it’s 1:30 in the morning and I just finished my brownie sundae after being in Labor & Delivery for several hours to rule out premature labor and long story short they couldn’t find anything wrong so I’m just supposed to “take it easy, drink a lot, and keep monitoring the symptoms.” And, I’m going to go have another brownie because every pregnant woman knows that calories certainly don’t count when you’re in a pissy mood from a condescending OB resident. Also? I just ate what I thought was a brownie crumb. Only it wasn’t. Might have been one of Menininho’s boogers. GROSS. Thanks, Kid.

Aaaaanyway, since I don’t have the time or mental energy to devote to doing the articles I was going to talk about justice, I’m just going to post the link to a nifty site called Mila’s Daydreams. It’s nifty. Makes me wish I was more creative. Or less busy. Or both.

Oh and there is something really nifty coming here tomorrow. I’m co-hosting a blog hop party with To Be Thode! And there will be PRIZES! So, come back on Saturday for a post that explains the party and then prepare to join in. 🙂 You can grab the button code from my left sidebar if you’ve heard about this on Twitter and already know you want to participate. Basically, it’s a party for everyone who is not going to the BlogHer conference next week.

July 29, 2010
by marfmom
7 Comments

First Speech Therapy Appointment

The Menininho had his first speech therapy appointment yesterday. FINALLY! His speech therapist is a guy, which was a little surprising to me just because I’ve never met a male speech therapist, but hey, that’s cool (let’s call him The Man from now on). Overall I really liked his methods, such as immediately rewarding M. after moving his hands into a sign once, then saying YAAAAY. The speech therapist we’d seen for the initial evaluation, whom I wasn’t fond of, insisted we move his hands into the sign ten times before rewarding him, which just led to a really angry toddler. Menininho actually responded amazingly well to the shorter method and by the end of the session, although he couldn’t make the sign, would mimic YAAAAAY after his hands were made into the sign for “more” (the sign of the session). This was huge and I pray this kind of improvement continues.

The Man was also willing to be flexible with his planned activities. For instance, when he saw Menininho was interested in playing with goldfish, he let him do that for quite awhile, all the time practicing “more.” But eventually, he guided M. to other activities as well so that he could assess his adaptability and sorting skills.

Yes, there were a few things that I wasn’t 100% happy about, but hearing that YAHHHH from my son over and over again is enough to keep me happy for now. Mimicking sounds just isn’t something he’s really done before. Even better, it continued after the session and into the evening. 🙂

July 28, 2010
by marfmom
8 Comments

LOVE This Kid

Ok, so this is more of a wordFUL Wednesday, but I can’t help it!

Just look at this kid.

He did his counter-clockwise walking around the table like this for quite awhile the other night. I’m grateful that Menininho paused long enough for Mark to snap a picture.

It’s been rough for me lately, working on the special education stuff for my son. There are days when it’s just so sad that I have to sit and cry. I end up comparing him to other kids his age and sniffling to Mark “Why won’t he let me hold him when he cries? Will we ever get him to quit hitting himself? I wish we could play TOGETHER.”

And then he does something like put a tablespoon in his mouth and make a funny face and my heart swells and I realize I am darn lucky to be his momma.

He is a joy.