Musings of a Marfan Mom

October 14, 2010
by marfmom
8 Comments

A REAL Way to Spread Cancer “Awareness”

You’ve probably seen the breast cancer “awareness” meme on Facebook recently. An email went around to the tune of “let’s show those guys how strong we are!” and instructed women to put the location of where they like to set their purse as their status, with no further information.

The result? Sexual innuendoes plastered across Facebook, but no mention of breast cancer at all.

Yah, that’s really showing all those guys how strong we are. Instead of doing something of substance, let’s just tee-hee about how we wrote “I like it on the floor by the back door” and made all those guys think we were talking about being sexually adventurous.

I’ll be blunt. I think memes like that are stupid and degrading. Breast cancer isn’t a joke. It’s not sexual. It’s deadly. I doubt there is a woman alive who isn’t aware that breast cancer exists. There is NO need for “breast cancer awareness.” What we DO need is education about prevention. We DO need affordable medical care. We DO need access to fresh fruits and vegetables (you might be surprised how many people in the urban US don’t live within reasonable distance of a grocery store). We DO need money for research and programs that support families dealing with cancer.

This month is breast cancer awareness month. If you REALLY want to make a difference in cancer, please consider what I’m about to tell you.

I recently became aware of a woman who lives near me named Sanjana. I do not know Sanjana personally; her family or friends left flyers about her on every door in our apartment complex. She’s a teacher and mother to young twins, and she’s dying from a rare type of blood cancer called Multiple Myeloma.

A stem cell transplant could save her life, if she had an eligible bone marrow donor donor. Unfortunately, she’s South Asian and so few of them are registered with the Be The Match registry (formally the NMDP registry) that the chance of her finding a donor is only 1%. In fact, it’s difficult for any ethnic minority (read: non-White) to find a donor. The community is doing everything they can to register more South Asians in the hopes of finding a match.

So, if you want to take a public stand against cancer this month, consider signing up to be a bone marrow donor. Donate your Facebook status to telling people about the Be the Match registry and Sanjana. Encourage your friends to join you in spreading the word about bone marrow donation.

I’ve been involved with raising money for and awareness of the registry since I was 14 years old. I know there are a lot of myths about donation, so I’ll take a moment to dispel a few. First, it’s quick and easy to register. Go here to request a kit: you’ll need to take a swab from the inside of your cheek & answer some general health questions. That’s it. There is a fee associated with joining the registry, but a lot of people donate to help offset this fee and the registry isn’t going to turn down a would-be donor because of an inability to pay. If you pass the qualifications, all you do is wait to be matched. This could happen right away or take years and years. You won’t be responsible for any medical costs associated with donating, and most donations do not require surgery. Joining the registry does not bind you to anything. Even if you’re matched, you don’t have to go through with the donation if you change your mind.

Please: decide to make a REAL change to the face of cancer and become a part of the Be the Match bone marrow donor registry.

If you’re interested in doing more to help Sanjana, you can check out her Facebook page and website.

October 12, 2010
by marfmom
0 comments

Review: Motherlove Herbal Company

While I’m not someone who insists on organic all, or even most, of the time (case in point: tonight’s dinner was pizza, with a side of ho-ho with ice cream on top), I am trying to be more conscious of what goes in and on my son’s body. When it’s reasonable, we’re slowly adding in more natural products, like cloth diapers, homemade baby food, and trying out a CSA. So, when Motherlove Herbal Company contacted me about reviewing a couple of products I was eager to!

Started by a professional herbalist, Motherlove began two decades ago, making it the oldest truly-safe such company. They “follow the Good Manufacturing Practices (GMP) set forth by the AHPA and the FDA” and the “herbal supplements are made in an FDA registered, GMP certified facility.” None of their products are tested on animals and they use wind credits and recycled materials. For more information on their green manufacturing click here.

I also love Motherlove’s resource link. There you can get information on which herbs you should avoid during pregnancy/which can help with various pregnancy-induced maladies, how to increase your breast milk supply, recommendations for various types of books, studies about breastfeeding, and more. Their blog contains even more information about pregnancy, birth, and breastfeeding. After reading all of this I could tell that Motherlove is a company who truly cares about their customers, making them the type of company I’d be pleased to partner with.

They sent me two products to try out: their diaper rash & thrush ointment and their pregnant belly salve.

The Menininho has been cursed with super sensitive skin. He has battled diaper rashes almost since birth and Mark and I are constantly trying out new ways to manage them. The diaper rash ointment came just as M. had another rash outbreak: perfect timing! A little bit of this ointment goes a ways: at this rate a 1 ounce jar should last us about a month, using it at every diaper change, every day. It took about a week for the rash to clear up. But, unlike with some other creams and ointments we’ve tried, the rash didn’t get worse (read: begin to bleed) once we started the Motherlove ointment. As long as we used it consistently, the rash stayed at bay. A couple of days ago I stopped using it as an experiment and the rash came back in full force within 24 hours. So, it’s time to go back to using the ointment!

I can not say enough good things about the pregnant belly salve. My skin has itched a lot with pregnancy – until it has bled, actually. When I was pregnant with M. I tried a few different creams and ointments. Some smelled so bad that Mark didn’t want to be around me. Others just plain didn’t work. The one I eventually used worked ok but left my skin sticky for a long time after I’d apply it. The belly salve has a strong lavender smell…not so much that it’s overpowering, but enough that it was kind of calming and I’m debating bringing some when I go into labor, just to smell. The base for the product is beeswax so it appears sticky at first, but once I rubbed it in, I wasn’t left feeling like I’d been dipped in vaseline and my clothes didn’t stick to my belly. Best of all though? The itching stopped within 30 seconds of me applying the salve! It worked so well I even applied it to my eczema, with good results there too. I’ve applied it every night before bed and sometimes during the day time as well.

Motherlove Herbal Company definitely has a new fan in me! I encourage you to check them out. You can find them via their website, their blog, their Twitter page, or, of course, Facebook.

* Motherlove Herbal Company provided me with 2 products to review free of charge. All opinions expressed in this review are my own.