Musings of a Marfan Mom

November 25, 2010
by marfmom
5 Comments

Happy Thanksgiving

Happy Thanksgiving, everyone!

Everything Thanksgiving I think back to the tradition of the turkey bag that we had at my house growing up. I think know I was the only one who really loved it. We cut out pretty “turkey feathers” from construction paper & each person at dinner had to fill out a set number with things they were thankful for. All the feathers went into a bag and we’d take turns reading them aloud and guessing who had written what. My sophomore year of college I started doing Thanksgivings with Mark’s family and the turkey bag fell to the wayside.

This year we’re obviously not able to travel to Ohio for us to celebrate with Mark’s family and so, in the absence of being able to practice the traditions we’ve started with them, I figured I’d pay homage to the turkey bag and share some of the things I’m thankful for here on the blog.

In no particular order…

I am SO grateful to be pregnant and a little sad that it’s all about to come to an end. I had hoped to be able to have a first child but wasn’t sure if that would be possible. I never allowed myself to think about having a second child and even though this pregnancy has been difficult I am still in not a huge rush for it to be over (especially given that Mark, myself, and everyone involved in my care has agreed a 3rd pregnancy wouldn’t be a smart idea for me).

I know I complain about/mock some of my medical team on here, but I’m really grateful for my cardiology team. They truly care about me and my family and today the clinic coordinator emailed to check in on me and “our” baby because she considers all the Marf kids to be part hers.

Mark has been incredibly supportive during this pregnancy, from late night donut runs to taking over the cooking, cleaning, and evening care of M. Last night he even brought me a poinsettia to mark the 7th anniversary of us dating (which I’d totally forgotten about).

Whoever invented Starbucks pumpkin bread is on my thankful list, as is my friend Kathleen for introducing me to it. It’s my drug of choice. Don’t judge.

I live somewhere where hitting the 30s is record breaking freezing and it’s all over the news. That makes me happy. It’s Thanksgiving and I didn’t need a winter coat till today!

Seeing M. seem happy at his new school is awesome. I can’t help but laugh as he walks into his classroom and dumps his jacket, backpack, and whatever stuffed animal accompanied him to class that day on the floor as he heads off to grab a toy. He usually doesn’t give me a backwards glance but he is always excited to see me at pickup and that is a huge improvement. I can’t help but melt at that smile!

I’m also grateful at everyone who has helped out as I’ve had problems come up with this pregnancy: those who brought over meals, helped babysit M., and the family that has taken shifts these past few weeks, all to help make sure Smudge stayed put until he was full term.

What are some things you are grateful for this year?

November 24, 2010
by marfmom
7 Comments

37 Week Update Part 2

Monday we left off when my OB was preparing me for the possibility of delivering Smudge that afternoon.

I headed up to Labor & Delivery, called Mark to come sit with me, called our doula to be on alert, and settled in with the monitors. Almost immediately the nurse, who had seen me in the ER when we were concerned about a dissection, asked me when my induction date was. When I explained to her that VBACs can’t be induced with pit (and I’m barely 37 weeks!), her face fell for a moment. Within a moment it had brightened again as she said “Oh! Well, that’s great! Then they can schedule a c-section for you!”

Sigh.

I told her that’s not the plan for me, I had complications with my c-section, they’re contraindicated for Marfan patients like me. I think I just offended her though, because she replied “Well! MOST women like to know exactly when their baby is coming but apparently not all of them! Either way you won’t go past 41 wks.”

After an hour and a half on the monitor I asked to go to the bathroom. When I came back I was told that whoops, I was supposed to be on the monitor for two hours continuously! So, my 2 hours would have to restart. Mark and I didn’t leave the hospital till 8 pm, but at least Smudge had a good report. He’d only had one decel during that time, and only to 90. But, I still had to come back Saturday and Sunday to repeat the tests.

Saturday went well but Sunday had a small hitch. A resident came in and stopped the NST a little early because Smudge was doing well. She pulled up the ultrasound machine to do my AFI, and I informed her that since yesterday’s reading was a 10 (normal is 8-18, but 8-10 is normal for this late in pregnancy) I wasn’t sure I needed another test. She did one though, because my OB insisted. Well, right off the bat she tells me my baby’s butt is in the lower right quadrant.

“Are you sure?” I asked. “He’s been head down pretty consistently since 24 weeks. He was head down yesterday!”

No, no, she insisted he was now either transverse or breech. She pointed out his heart to me. Kept searching for his head. Couldn’t find his head. Did another full scan of my belly. No head. After about 3 minutes of searching she finally realized WHOOPS! The baby’s “butt” WAS his head! Or maybe what she thought was the shoulder was the head? Either way, baby was still in vertex position.

Then, she announced my fluid was only 6-7 and this was concerning, especially since I’d been at 10 the night before. I was SO CLOSE to saying “Look, you couldn’t tell my son’s rear end from his head. I am not too confident you can measure his fluid correctly.” Instead I suggested she redo the test, and she got an 8.2: normal. But no, she was still worried! And this time I did speak up and inform her my test was just fine and she agreed, but still wanted to check with the attending, just in case. I had to wait for a birth to be finished before I was allowed to go. I imagine the attending gave her a hard time about it, or at least I kind of hope so.

Yesterday I had another round of NSTs/AFIs (to get back on my regular twice a week schedule) and everything was fabulous, so I’m assuming the worrisome decels we saw on Friday were just a fluke. I pray that Smudge continues to do well until he decides to grace us all with his appearance!

November 23, 2010
by marfmom
0 comments

Little Ones Giveaway Winner

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