Musings of a Marfan Mom

January 31, 2011
by marfmom
6 Comments

The After Birth

Since Baby J was born, several people have asked me how I felt about having a c-section, since I spent my pregnancy very vocal about wanting a VBAC. I wanted to take some time to really process everything, and to complete my 6 week follow-up with my OB, before I wrote anything about it though.

As I wrote before, I felt at peace when I had my c-section. It wasn’t until a couple weeks later that here and there doubts began to creep into my mind. Why didn’t I ask how long J was taking to recover from his decels? What if I’d waited a little longer to consent? Even though I’d had very little sleep during the night and was in a high-stress situation, I was giving myself a hard time for not being more present in the moments when it counted.

My doula called shortly before my 6 week check-up with my OB, and we talked through some of these things together. She reassured me that both she and Mark were watching the monitor (it was positioned out of my view) and could verify everything the doctors had said. She really felt there was no other way. I wanted to wait and get the report on my placenta before agreeing though, since the OB who performed my c-section sent it to the lab to look for a cause to the problems Baby J had in utero.

At my appointment, I told to my doctor that I understood I could never know for sure what caused J to be in distress over the last few weeks of pregnancy, but I really needed to know what was in the placenta report. He explained that both he and the OB who did the c-section believed I had placental insufficiency, but there was no way to prove it. We read over the report together and everything was normal, except that my placenta was too small for gestational age. I was told that this is a reasonable explanation for the baby having low oxygen and a decreased baseline heart rate, though of course it might just be a coincidence and have nothing to do with anything. In my heart though, I feel that the small placenta is what caused the problems. What caused the small placenta is a mystery though.

So, I do feel ok about my c-section in that I believe it was necessary and that it went as well as it possibly could. I don’t think I’ll ever second guess that again. Overall it was a positive experience.

At the same time though, I do have some feelings of sadness. I will never have another biological child. I’ll never be able to experience labor, never be able to touch my baby’s head as he crowns, never be able to watch him crawl up my chest to latch onto my breast for his first nurse. Some day I will be able to let that go, but for now it sometimes makes me sad.

(And to those of you who suggest that I have no right to have this sadness because hey, I have a baby, to you I say someone will always have it worse and we do each other a grave disservice if we tell a woman she is not allowed to grieve her experiences. It is possible to be grateful for our children and still have regrets about the circumstances.)

There are two reasons a VBAC was so important to me. The first was that I wanted the opposite birth experience than I’d had with the Menininho. I believe that even though I had a repeat c-section, I was able to achieve that.

The second reason is more complex. I live in a body that tells me no a lot. It has been doing so for a long time. No, you can’t ride horses or play basketball anymore, Maya. No, you can’t buy jeans off the rack. No, you can’t go a day without taking medication. No, you can’t have complete control over reproduction.

For once, I wanted my body to tell me yes. I wanted to be able to give the proverbial finger to my body, to Marfan, and say See? I CAN do something that women without Marfan can do. I can do what the research papers say I should be able to do. Tell me yes, I can have a vaginal, a normal, birth. But not only did my body tell me no, it was a great big “Oh NO girlfriend!” And now that I can’t have any more biological children, the door has been completely closed on that yes, the biggest yes.

And THAT is what will take the most time to heal.

January 27, 2011
by marfmom
11 Comments

Close, but No Cigar, Kid.

The other night we all made a quick trip (well, as quick of a trip as you can make with two little ones) to the mall. The Menininho is at the stage where he’s looking for some independence, so instead of riding in the stroller he often prefers to walk. This outing was no different; he held my hand in the parking lot and then I turned him loose in the concrete area between the movie theatre and the mall. He had a great time running big arcs to keep up with Daddy and away from “the monster” trying to catch him and eat him.

This was all fun and games until I saw the cigarette disposal. You know the ones: they look kind of like a trash can except the top is an ashtray. M and I saw it at the same time and he bolted for it. I lengthened my gait and grasped his hand just before he reached for some cigarette butts.

“FRIES!” he exclaimed.

Oh.

No honey. I can’t promise you many things in life, but I can promise you those will NOT taste like In N Out french fries.

I don’t know if Mark and I have laughed that hard in a long time.

What’s something funny your kids have said?