February 8, 2011
by marfmom
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New Children’s Book

The National Marfan Foundation has yet another resource for parents! They have just made available a short children’s book called Marfan Does Not Mean Martian. It was written by a middle school student named Elias Clark Turner for a biology project. The book “is an inspirational story about Marvin, a boy diagnosed with Marfan syndrome, and the friendship he builds with his new neighbor Joe. The story educates children about Marfan syndrome while teaching them about diversity and acceptance.” You can read the book on the NMF website.

February 7, 2011
by marfmom
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A Visit With Friends

I have been soooo homesick recently. My family, Mark’s family, and many of our friends are back East. We don’t get out there often enough and when we are able to make a trip, we don’t get to stay as long as we’d like. It’s been close to a year since we’ve been to Ohio.

As you can imagine then, it was a pleasant surprise to get a phone call Friday morning from some Ohio friends of ours, letting us know they were visiting family in town. We were able to meet them for some quality park time this weekend. What a much needed emotional lift!

The kids were not so excited about this picture.

* I have no idea why all these pictures are tinted blue.

February 4, 2011
by marfmom
3 Comments

Friday Favorites

Welcome to Friday Favorites! If you’re new to the blog, here’s how to play along. Every Friday I devote my post to showcasing awesome blog posts by other bloggers that I’ve read over the past week or two. I invite you to do the same and link up here, OR just link up directly to those posts you’ve loved this week. This is any easy way to share the love and find great new blogs.

It’s been a little while since I’ve done Friday Favorites, but we’re back now!

First up is a post by Lauren who is known throughout the Twitterverse for her postpartum mood disorder advocacy. Her post Sticks and Stones will break my bones but Words… is a reminder to consider the words we use to describe depression.

Ellen from Love That Max is one of my favorite “special powers” bloggers. I find a lot of her posts speak to me, and 25 Things That Make Special Needs Parenting Easier was no exception. I’ve really been feeling #8 and #9 in particular recently!

Last but not least is my friend Kristi over at Live and Love…Out Loud!. Kristi is full of great ideas and recently started two monthly series on her blog: Women Who Empower and Small Business Spotlight. Last month she featured breastfeeding advocate Dagmar Bleasdale and Paperdoll Handmade Accessories. This month I am humbled to be featured. Also, if you do Wordless Wednesday on your blog, you should definitely link up at Kristi’s blog: she sometimes has mystery photos to guess! And somehow, in the midst of all of this, Kristi still has time to bake cake balls!