Musings of a Marfan Mom

May 17, 2011
by marfmom
10 Comments

Airport Dry Run & a Social Story

Mark and I have been feverishly preparing for this weekend’s trip to Ohio. In addition to the general preparations like grabbing snacks and doing laundry, there is the matter of planning for the Menininho. He hasn’t been on a flight this far or gone this long in at least a year, before his sensory and behavioral issues cropped up.

We’ve been working with his therapy team to prep him for a couple of months. I created a book of family members’ names and faces, with the hope that M won’t be overwhelmed at seeing all of them. I’ve written some social stories as well (more on that below).

Sunday, we decided to do a “dry-run” of the airport to see how M would do. We went in the evening when it would be less crowded. Overall it went well. M got to practice walking through the lines, we touched base with a TSA worker about the best way to get through security, and checked out the bathrooms. The Menininho is afraid of public restrooms because (we think) of the noise from toilets flushing. Whenever we go somewhere he insists on seeing the bathrooms and then ends up scared. The airport was no exception and he got stuck on some verbal loops (repeating the same word over and over and over…a coping mechanism like his rocking or spinning) as a result, but no tantrums or trying to run away. We did use the harness though, since running is a usual issue.

Airplane rides can be difficult enough for parents of toddlers without throwing in autism or sensory issues too. Social stories are tools to help make potentially uncomfortable situations a little more predictable and to remind the child that they have coping mechanisms available. Below is the social story I wrote for M. with his behavior therapist Feel free to use/adapt it for your child!

Going on long trips can be adventurous and exciting. Sometimes people take airplanes to go to far away places. Airports sometimes have long lines. While I’m in line it is important to stay with my mom and dad because they keep me safe. To make sure I am safe I will wear my puppy backpack.

When we go to the airplane we may have to have people check our pockets to make sure everyone is safe. This is ok because my mom and dad will be there to hold my hand making sure I am ok. I will need to take my shoes off but I can help put them in the tray to be checked.

Airports are loud because there are a lot of people, loud airplanes, and other machines. If the noises are scary I can ask for squeezes from my mom and dad. It is important to always have a calm voice so the noise doesn’t get to be too much.

When we are on the airplane or in the airport, the bathrooms might be very loud. It’s ok though; the sounds are just from the potties like we have at home. Mommy or Daddy will keep me safe though, and we can sing songs to take my mind off the noise.

When the airplane is in the air I might have a weird feeling in my ears. When this happens I can ask my mom or dad for a little snack and it may help my ears.

When I am on the airplane it is important for me to be nice to my fellow travelers. This will mean I wall always have to have calm hands, calm feet, calm voice, and a calm body. I will need to stay in my seat with my seatbelt on.

Riding on an airplane can be very fun. I can look out the window and see the clouds. Flight attendants will bring me some juice or snacks. I can also read stories, play with toys, or watch my Elmo movies.

When the plane lands it will be bumpy. I can squeeze Daddy’s hand if I want to. Then we will need to wait our turn to get off the airplane. In the airport we will need to walk to get our suitcases. I will hold Mommy’s hand to be safe.

Then we will get in our car and go get something to eat.

The end.

May 16, 2011
by marfmom
7 Comments

Some Changes

As you can tell, we’ve made some changes here at Musings of a Marfan Mom. My wonderful, patient husband did everything last night for me. You’ll find my navigation bar is up top now, and comments are at the top left of each post instead of at the bottom. I hope to be able to move the comments back to the bottom eventually, but I’m not sure how much of this template I can edit. This is still a work in progress, so please be patient as I tweak things over the next month.

I’ll be adding some different icons, changing some widgets, and adding space for a few ads. I also won a blog re-design contest, so I’m trying to decide if I should go with a lightly colored background instead of the white, and if my header should remain photograph-based or if I should use a vector (a sort of cartoon illustration).

Feedback is welcome!

May 13, 2011
by marfmom
1 Comment

Friday Favorites

Welcome to Friday Favorites! If you’re new to the blog, here’s how to play along. Every Friday I devote my post to showcasing awesome blog posts by other bloggers that I’ve read over the past week or two. I invite you to do the same and link up here, OR just link up directly to those posts you’ve loved this week. This is any easy way to share the love and find great new blogs.

Jess at A Diary of a Mom wrote this great post about her daughter entitled This is Our Autism. M is younger than Jess’s daughter, but I could definitely relate. This is beautifully written.

Paula‘s post Alone, Red, in a Field of Yellow is another one that really resonated with me. I think most parents share the same concerns for their children that Paula writes about.

I love the blog Bird on the Street, written by Katy. If you’re one of the few people who hasn’t already read her post about what you can do for her, as the parent of a child with a disability, go read All I Ask now.