Mark sang this song as a solo in church yesterday and did a great job! I thought I’d share it with all of you too.
December 19, 2011
by marfmom
3 Comments
December 19, 2011
by marfmom
3 Comments
Mark sang this song as a solo in church yesterday and did a great job! I thought I’d share it with all of you too.
December 16, 2011
by marfmom
0 comments
It’s Friday, so you know what that means!
Come on over and link up the favorite post that you wrote this week. I promise I’ll come over and comment on each of your posts. I hope that you’ll spread the love and visit the blog or two above yours too. I’ll leave the linky up till Sunday night.
December 15, 2011
by marfmom
2 Comments
Not sure of what to get the Marf in your life this holiday season? Want to show your pride in being a Marfan Mom to the world? Love someone with a related disorder? MarfMom’s Marfan Merch has you covered!
Creating Marfan-pride shirts is something I’ve wanted to do for awhile, and finally found a way to make it work. It’s taken a couple of months for everything to come together and I’m really proud to show all of you my shop.
Cafepress sets the sizes and baseline price, and I’ve added the designs. They handle shipping too. Right now I’ve only got clothing items listed, but I may branch into mugs, hats, etc. soon.
I’m more than happy to take custom orders, so if you have an idea for a slogan you’d like, or want something in a different color or style, just shoot me a message! 🙂