May 17, 2012
by marfmom
1 Comment
It’s Friday, so you know what that means!
Come on over and link up the favorite post that you wrote this week. I promise I’ll come over and comment on each of your posts. I hope that you’ll spread the love and visit the blog or two above yours too. I’ll leave the linky up through Sunday night.
May 17, 2012
by marfmom
4 Comments
…had an *implanted* lens dislocate?
…had surgery for pelvic prolapses (bladder, cervix, utuerine), especially more than one prolapse at once and/or while also having severe dural ectasia?
If you have and are willing to talk about it, please leave a comment or drop me an email. One of my Marfriends is dealing with both issues right now and is having a particularly difficult time finding a surgeon willing to repair her prolapses due to her dural ectasia. Please share these requests in your Marfan and related disorder networks and lets see if we can find her some advice!
Thanks!
May 16, 2012
by marfmom
1 Comment
This past weekend my brother Matt got married to Taylor. M served as ring bearer. Here are a few of my favorite pictures!
