Musings of a Marfan Mom

September 28, 2012
by marfmom
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Friday Favorites

It’s Friday, so you know what that means!

Come on over and link up the favorite post that you wrote this week. I promise I’ll come over and comment on each of your posts. I hope that you’ll spread the love and visit the blog or two above yours too. I’ll leave the linky up through Monday morning.



September 28, 2012
by marfmom
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Running for Marfan

Recently, the National Marfan Foundation has started a fundraising initiative using marathons. We call it Team Heart and Soul. Team members fundraise as a condition of being on the team, while then naturally raising awareness. It’s a great way to get loved ones involved, since obviously those of us with Marfan aren’t going to be running any races!

21 runners will be participating for Team Heart and Soul in the Marine Corps marathon on Oct. 28th, with 5 people running the Marine Corps 10K that same day.

My friend Micah wrote yesterday to tell me that his girlfriend Stephanie, who is planning to be a nurse, is running the New York City marathon in his honor. Micah was in the teen program when I first started helping coordinate it, back in 2006. This summer he had his third heart surgery, to replace his aortic arch. I think it’s so awesome that Stephanie is supporting Micah in this way! If you’d like to support Stephanie in her efforts, go here.

How cute are they?!

And, if you’re interested in running for Team Heart and Soul in the future, let me know and I will put you in touch with the person coordinating those races. Another race is coming up soon!

September 26, 2012
by marfmom
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A Book Themed Baby Shower

Last week I threw a baby shower for one of my best childhood friends. We asked guests to bring a book for the baby’s nursery. All the food matched up with children’s books, and each table was book themed as well. We had the Fancy Nancy table, the Mem Fox table, the Steven Kellogg table, and the Dr. Seuss table. I bought a book (Love You Forever) for all the guests to sign too, as a nice record of the shower for the baby.

Menu:
Pasta salad – Strega Nona
Baby carrots with ranch dressing – The Velveteen Rabbit
Green cupcakes with white icing and a green icing dot in the middle – Green Eggs and Ham
Cookies – If You Give a Mouse a Cookie
Swedish fish – One Fish Two Fish, Red Fish Blue Fish
Hot chocolate – Charlie and the Chocolate Factory
(I also tried to do bacon for Charlotte’s Web, but it didn’t come out so well so I scrapped it.)

We played a match the celebrity couple to their baby game, and then a game where the women had to identify the children’s books by the provided excerpts, characters, or places. I had a lot of fun writing those! I think I made the celebrity baby one too hard…I think the winner was the person who got 5 right, and there were like 22 different couples/babies. Whoops!

My other whoops was forgetting a table cloth for the food table. So, um, ignore that in the pictures please! 🙂

book themed baby shower
green eggs and ham cupcakes