Musings of a Marfan Mom

Have You Ever…

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…had an *implanted* lens dislocate?

…had surgery for pelvic prolapses (bladder, cervix, utuerine), especially more than one prolapse at once and/or while also having severe dural ectasia?

If you have and are willing to talk about it, please leave a comment or drop me an email. One of my Marfriends is dealing with both issues right now and is having a particularly difficult time finding a surgeon willing to repair her prolapses due to her dural ectasia. Please share these requests in your Marfan and related disorder networks and lets see if we can find her some advice!

Thanks!

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