Musings of a Marfan Mom

Conference Recap in Photos

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Meeting up with some of my fabulous women I talk with daily about everything from the ins and outs of raising a child with Marfan syndrome to which fast food is the tastiest.
Marfan Moms
Marfan Moms

Waiting in line for elevators, busses, etc.
waiting in line

Getting to hang out with the Marfan community’s best and brightest: the teens!
teens with Marfan
Marfan teens dancing
Marfan teens

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