I thought the Rosie show with Ann and Jonathan went so well today! Below is another clip from the documentary. Enjoy! [youtube=http://www.youtube.com/watch?v=8HwqB5XqWAA]
November 10, 2009
by marfmom
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Category Archives: Uncategorized
November 9, 2009
by marfmom
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In My Hands
In July 2007, Tony-award winning choreographer Ann Reinking came to the National Marfan Foundation conference at Stanford to start filming a documentary on Marfan syndrome. Her son has the disorder and, as a choreographer, Ann recognized the beauty of the … Continue reading
November 5, 2009
by marfmom
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A Point of Pride
There are two irrefutable rules of high school: 1) Most teens want to be like all other teens (although they won’t outright admit to this) and 2) Athletes are the least likely group on the adolescent food chain to get … Continue reading