January 27, 2010
by marfmom
18 Comments
The time has come. Menininho has finally hit 20 lbs. Because of my heart and back problems, my doctors told me before I became pregnant that once my future baby hit 20 lbs I’d no longer be allowed to carry … Continue reading
January 26, 2010
by marfmom
3 Comments
I have a Google Alerts out for articles on Marfan syndrome, and I was shocked and then angry to come across this UK Times Online article: Embryos Destroyed for ‘Minor’ Disorders. Even more upsetting to me was that the article … Continue reading
January 25, 2010
by marfmom
8 Comments
Today is the 2nd installment of a three-part series: Marfan Through the Eyes of the “Unaffected.” You’ve read my story, but what about how Marfan has affected those around me? Over New Years Mark, the baby, and I met one … Continue reading