May 23, 2011
by marfmom
4 Comments
“The lens in your daughter’s eye is dislocated.” And with these words, our journey to a Marfan syndrome diagnosis began. Our beautiful daughter Alexa was born in April of 2003. She was perfect. She was our first baby and we … Continue reading
May 22, 2011
by marfmom
5 Comments
I met Jess online, as Brody is not much older than Baby J. She shares her story of Brody’s diagnosis below. Brody was born on aug 13, 2010 after a stressful 24 hour delivery. Upon birth, the doctors noticed his … Continue reading
May 20, 2011
by marfmom
7 Comments
Going into parenthood is an exciting, scary, and exhilarating point in anyone’s life. When my husband and I had been married for a year, we decided it was time to start trying. Going into it we knew that our child … Continue reading