July 9, 2014
by marfmom
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Hi everyone! Just giving you a heads up that I’ll be MIA for a couple of weeks. We’re headed out to the annual Marfan Foundation conference today, and after that I’ll be out of the country. I’ll be back on … Continue reading
July 8, 2014
by marfmom
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Today’s guest post comes from Kathy, mother to a teen with Marfan. Our son Nik was Diagnosed with Marfan syndrome last February 11, 2013, but it wasn’t our first time hearing the word Marfan. Nik was born with very crooked … Continue reading
July 4, 2014
by marfmom
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Come on over and link up a favorite post that you wrote this week! Amy and/or I will come over and comment on each of your posts. I hope that you’ll spread the love and visit the blog or two … Continue reading