June 27, 2009
by marfmom
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Nothing happened for a while. Months and months went by, and my doctor didn’t answer my letter. Finally, towards the end of 7th grade, nearly a year after I mailed it, I received a response. A hospital social worker had … Continue reading
June 24, 2009
by marfmom
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I’m not quite sure where my story starts, but I suppose the Coolest Thing to Ever Happen to an 8 Year Old is as good a place as any. Ever since my parents first used me to get them free … Continue reading
June 23, 2009
by marfmom
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I got wonderful news today! The National Marfan Foundation called me this afternoon and asked me to speak in front of EVERYONE (300-500 people) at conference! The last event at conference is the 4 person “Living Successfully” panel, comprised of … Continue reading