I balance the hats of full time grad student (genetic counseling), mom (to 4 kids with a variety of diagnoses), and wife (to a cute nerd). I have my Masters in Public Health (my interest being in patient advocacy), and am an active volunteer with The Marfan Foundation. In my spare time I’m a romance novel enthusiast (I read 261 books in 2022).

This blog is about my personal experience with Marfan, how having Marfan affects my roles of wife and mother, and my general thoughts on motherhood. Sprinkled in are bits about adoption, genetics, and fashion (my kids sometimes enjoy doing red carpet critiques).

The Marfan Foundation defines Marfan as “a genetic disorder that weakens multiple body systems, including the heart, blood vessels, bones and joints, lungs and eyes.” For a more detailed description, check out my Marfan 101 post.

This blog is not intended to take the place of medical advice from your doctor.  Always consult a physician with questions about your health.  The Marfan Foundation can provide you with information on Marfan-knowledgeable doctors.

This blog is also not affiliated with The Marfan Foundation.