Hi! Thanks for coming by my blog! You can find out more about us below.

Maya: I’m a 30-something year old outspoken Latina mother of four, and I have Marfan syndrome. I have a Masters in Public Health, with my interests being patient advocacy and maternal and child health, and I’m working on a 2nd masters, in genetic counseling. When I’m not doing homework, corralling my kids, or volunteering with the Marfan Foundation, I love reading and trying out new restaurants.
Mark: My husband is my rock. He supports me in everything I try. We met in college, where we were both in the marching and pep bands. Mark is an electrical engineer with passions for music, nature, and gaming.

The Menininho: This isn’t my son’s real name; Menininho means “little boy” in Portuguese. He’s not so little anymore, but I’ve been blogging since he was a toddler. He loves engineering, especially bathroom design, running cross country and track, and percussion.

J: J (formerly Baby J) is now a middle schooler.  He’s a complete social butterfly and loves video games, sneaking candy, and reading (especially graphic novels!). J also has Marfan syndrome.

Miss R: Miss R was born knowing what she wants, and that has never changed. She enjoys playing sports, reading, and art. She might seem shy at first, but once you get to know her, she’s got a big personality!

Bean: Bean completes our circus! She’s pint-sized and perpetually happy. Her favorite activities include school, bowling, and anything having to do with the show Bluey.