Musings of a Marfan Mom

What Would You Want Them to Know?

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Today I have the opportunity to speak to medical students about Marfan syndrome. I’ve been able to do this once before, at another hospital in another state, when I was an undergraduate. My life has changed a lot since then, and some of the points I think are important to make have changed.

What would you want the next generation of doctors to know about your medical condition?

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