Musings of a Marfan Mom

The Liebster Award


The super awesome Kerry, of the blog Undiagnosed but Okay, gave me a blogging award called the Liebster Award! Thank you, Kerry! I “met” Kerry through (I think?) Ellen Seidman’s blog Love that Max, which has a special needs blogger link-up every Friday.

Along with winning the award comes a few tasks. First, besides obviously giving a shout-out to Kerry (seriously, go check out her blog!), I have to display the award:

Next, I pass along the award to 7 other bloggers that I love. In no particular order:
My So-Called Supermom Life: Jamie is a Marfan Wife/Mom. We met when I found her blog via a Google Alert. In the years since then, we’ve also been able to meet in person on a couple of occasions. I love when that happens with bloggy-friends! Jaime blogs about Marfan, but also just general life with 2 kids and a husband.

Running for Autism: Kirsten is an autism mom, like me. We “met” in an online support group for parents of kids on the spectrum. She is a runner and raises awareness for autism with some of those runs. Her blog is about autism and her take on current events. Kirsten is getting ready to go back to school to study writing, too.

Bird on the Street: Katy writes this blog about life with 4 (adorable) boys, ages 4 and under. Her oldest son has cerebral palsy. The family just started going gluten-free. One of these days I need to ask Katy how she came up with the title for her blog!

Connective Tissue Disorders: My Journey: This is written by one of “my” teens, Katie. She writes about chronic pain and living with Marfan syndrome.

Our Sunshine Angel: Kristin’s daughter, Callie, passed away from severe Marfan syndrome shortly after birth. Kristin continues to be a resource in the Marfan community, and has recently started the project Kindness for Callie.

The Giraffe Family: Another blogger that I’ve been able to meet in person, at conference! Marf parents will find themselves nodding along to some of “Giraffe Momma’s” posts. I love her explanation for the Giraffe nicknames for her family members…go read it!

Live and Love Out Loud: Kristi and I bonded over Twitter. Hers is NOT a special needs blog. Kristi takes gorgeous photos. Her family just moved to WA and her pictures totally make me want to vacation there.

Perspicacity: Bonus blog! I’m giving this award to 8 and you can’t stop me. Paula is a runner. She also has a huge heart and is always blogging about various charities. Sometimes she combines running and charity work…this year she ran a race for Autism Speaks and each mile was in honor of someone with autism, including one mile for M. Paula is a great blog friend!

Then, I have to tell you 11 things about me. I’m not sure why 11 and not, say 7, but it is what it is.
1) I’m watching this week’s Parenthood episode while I’m writing this.
2) I’ve been craving soup all day. But I had some for lunch from a can and it was not that great.
3) I love fuzzy socks in the winter.
4) I am missing California like whoa right now, especially seeing emails from my autism moms’ group there about a party tomorrow night.
5) Baskins Robbins’ chocolate chip milkshakes are amazing.
6) I am a night owl.
7) I was a huge Alias fan back in the day.
8 ) I speak fluent pig latin.
9) Most of my mom’s side of the family lives in Brasil.
10) I want to write a book but I don’t know how to find someone to publish it. I’ve had the title worked out since I was in high school.
11) In college, I got to present a research poster at a concert in Rome.

Finally, I have to answer questions that Kerry picked out:
1) If you could change one thing about yourself what would it be? My eyebrows. I hate having to get them waxed.
2) High heels, sneakers or flip flops? flip flops, but I love heels for the right occasion!
3) The Beach, the City or the Mountain? beach!
4) Who is your favorite singer/group? I have a lot…Adele, Train, DMB, the Lumineers are great right now, GooGoo Dolls….
5) If you could vacation anywhere (expense is not a consideration) where would you go and why? I’d love to do a UK tour to see my Marfriends there!
6) Do you mind that my blog is sometimes snarky? Nope!
7) What is one thing we would be surprised to know about you? Anything that I’ve already said, haha
8 )Favorite, guilty pleasure, TV show? I love Castle, but you should all already know that :-p
9) Favorite book or author? Phoenix Rising by Karen Hesse (it’s YA lit but I always cry when I read it)
10) Do you admit to having a favorite child? My favorite depends on the time of day, haha
11) If you could replace your life with one from the Disney Channel which show would you pick? I have nooooo idea. We don’t really watch it so I don’t even know what shows are on.

I’m going to be lazy and say if you won the award from me, just answer the same questions that Kerry asked :-)

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  1. Congrats on the award! I’ve done a little research on getting published. Let me know if I can help you in any way!


    marfmom Reply:

    I’d love any tips you have! The book I’m working on is non-fiction. Thanks! :)


  2. OMG — thanks Maya! Love it! You are always my first text when something comes up and I need a Marf-answer. :)

    TOmorrow – I am putting up my award and answering those questions for everyone!! :)


    marfmom Reply:

    Can’t wait to read it! AFTER you’ve gotten some rest though!!!


  3. Pingback: The Liebster Award

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