Yesterday, a blogger said goodbye to her son. Yesterday, another friend buried her baby. Yesterday, someone bombed the Boston Marathon. Sometimes, the world seems full of sadness. I am full of sadness.
April 16, 2013
by marfmom
2 Comments
Tag Archives: severe marfan syndrome
August 9, 2012
by marfmom
6 Comments
Stephanie and Logan’s Story
While I’m away at the National Marfan Foundation conference and vacation with my family, I will have a few guest posters from the Marfan community. Today’s post is by fellow Marf Mom Stephanie. I love her sense of humor and … Continue reading
March 28, 2012
by marfmom
6 Comments
So Your Child Just Got Diagnosed With Marfan Syndrome
Curiosity about Michael Phelps aside, it appears most people find this blog when their child is diagnosed with Marfan (as opposed to coming across it for later stage Marfan information, autism information, etc). I figured I’d take a moment to … Continue reading