Musings of a Marfan Mom

Progress!

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I know I’ve written a lot about M’s various therapists and challenges and I think it’s so easy to get caught up in all the ways he’s still behind that we can forget to celebrate the successes. I want to take a moment to share his progress. When M started therapy at 17.5 months, he had no words or signs. He didn’t respond to any commands either. When he started school at the end of September (19.5 months), he had a few signs and could speak 2 words. Now, at 25 months, he’s talking! Actually scratch that: my little boy is COMMUNICATING!

Here are some things that the Menininho can do now:
– He has about 50 words.
– When Baby J cries, sometimes M will bring me his binky, and that’s without me asking!
– While grocery shopping with Mark on Saturday, M spontaneously said “I. Waaa. Caacaas.” He’d seen some animal crackers and heaven knows how much he loves those. We don’t normally buy them, but with a request like that, who could resist?
– M will point to my computer and demand zuh-zee (music, and not to be confused with shooshee, his word for Rice Krispies, or Sheesh, his blanket). Even better? He can now request one of three songs: doggy (his current favorite), monkey, or ah.
– He loves to label things and will continue saying a word over and over until we agree that yes, that IS a hand, or a baby, etc.
– One of his current obsessions is the alphabet and he’s learned probably 2/3 of the letters, maybe more. M points them out everywhere.
– M isn’t shy about proclaiming “uh-DUH” (all done) or NO!

Please leave a comment with some of YOUR recent good news!

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7 Comments

  1. Great news Maya. Appreciate the update! My good news ….. My pulmonary rehab is going great, my treadmill time is up to 1/2 mile at 2mph, then I bicycle about a 1/2 mile, then arm cycle the same. Kind of my own triathalon – 3 times a week!

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    marfmom Reply:

    That’s terrific! Congratulations! :-)

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  2. Hooray for M! That is so exciting Maya!

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  3. Amazing progress- way to go M! My J starts preschool tomorrow- he seems excited- I’m nervous and hoping I don’t cry when I leave.

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    marfmom Reply:

    Good luck! I hope he has a great first day. You can do it! :-)

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  4. Such wonderful news. Communication is such a great thing for parents and kids. You can glimpse a bit more of what is going on behind the adorable face and watch their personalities form on a daily basis. I’m constantly in awe of the connections my kids make between things when they express them to me.

    My good news? We’re surviving this stomach bug and reading tons of books together. So I’m finally getting my snuggle quota met :)

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  5. I’m so glad to read this!

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