Musings of a Marfan Mom

Please Help McKenzie

| 5 Comments

McKenzie is a 2 year old beautiful little girl with a very severe form of Marfan syndrome. I first met her mother, Jennifer, a few months ago via NMF Connect, a social networking site for people with Marfan syndrome & related disorders and their families. McKenzie’s aorta is now larger than that of even many adults with Marfan, and she desperately needs surgery. If she does not get this surgery soon, she will die.

McKenzie’s family has arranged the top surgeon in the country to perform her surgery, and he is at Johns Hopkins. However, there are many things that McKenzie is going to need in order to make the flight, and that is where we’re hoping that you, your friends, and your networks can come in.

AngelFlight has agreed to transport McKenzie from her home in Florida to Johns Hopkins in Maryland, but in order to do so, they need the following items:

– Plane to fit 5-6 people and have access to use a AC adapter or Car Adapter to plug in her equipment.
– 2 ventilators weighing appx 10 lbs each
– 1 suction machine weighing 8 lbs
– 2 oxygen tanks
– Emergency bag with supplies
– At least 2 other travel bags

If you, or anyone you know, is able to help with these items, you may contact Jennifer via McKenzie’s Facebook group Pray for McKenzie. Thank you so much!

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5 Comments

  1. Hi, my cousin in law has a non-profit organization called “until journeys end” that helps with medical crisis’ that take you away from your home. I will email her and see what she can do. I’ll let you know. Thanks for posting this.

    Rachel Conklin
    rachelspeese@hotmail.com
    mom and wife to marfan affected son and husband

    [Reply]

  2. oh wow.. I’m sorry I don’t have any connections like that………..
    I will tweet about it & see if that helps :)

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  3. Stoppin’ by from SITS! I’d like to link to your post to spread the word.

    http://carrigansjoy.blogspot.com/

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  4. What a sweet little girl. I wish I could help with those items, but unfortunately I don’t have those type of connections. How can I link to your post from my blog? I don’t have a ton of followers or anything, but you never know…

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  5. I am going to pass this along to some people who might be able to help. Can’t promise anything but I’ll try!

    …stopping by from SITS…

    Steph @ A Grande Life

    [Reply]

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