Musings of a Marfan Mom

New Aortic Disease Study Seeking Participants


I wasn’t around for the plenary session at conference – where various doctors present their latest research – because I was with the teens, but I did hear about this study by Dr. Lynn Sakai. My understanding is that she is trying to develop a blood test that would measure aortic size, to better individualize when a person should have surgery. Pretty cool, eh?

Right now the study is recruiting in 3 sites: Portland, OR; Salt Lake City, UT; and Houston, TX. More information can be found in the picture I took of the study flyer below. I heard they might be looking at expanding sites, so if that turns out to be the case, I’ll let you all know!

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