Musings of a Marfan Mom

My next adventure

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OK, so this marks my third adventure. First I’ve been working on cross-stitching, though it’s coming along very slowly (I actually started this bib in January with the intention of giving it to someone else but now it will be for our baby…). Second was making the jam/canning. Third? Exercise!

Now, before you scoff, hear me out. Having Marfan syndrome does make exercise more difficult. I used to be on the high school swim team (well, in a modified version of course), and walk a few miles a day just getting around Case’s campus. But, my breathing problems associated with the disorder have gotten progressively worse, making it too difficult to do many things. Now, with a pulmanology appointment on Friday, I am optimistic for the first time in a long time. I think that with an inhaler and breathing PT I will be able to do some of the basic things I’d taken for granted, like stand up to fold laundry at the laundromat. I am really, really feeling good about this :-)

So, I decided to get back into walking for as long as I’m able. I found a willing partner in Sarah M. from church. Starting Monday we’ll meet at 8 AM walk for 30-60 minutes a few times a week. This is probably a little ambitious, but that’s the whole point of a goal right? To push yourself? Tonight I went out and bought walking pants that actually are LONG enough (who knew Target had long exercise pants?) and seem to accommodate my growing belly. Now all of you can help hold me accountable to my goal. I’m not trying to lose weight, but I know exercise is important for a healthy pregnancy and I think I’ll just feel better in general being able to do more.

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  1. You can do it! I wasn’t active at all while I was pregnant and I gained 20 pounds. By not active I mean I sat on the couch and did nothing else basically 24/7. Anything, even GOING to the laundromat, is better than that!Don’t be like me!

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