Musings of a Marfan Mom

MRI

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Headed in for an MRI of my spine this afternoon. The pain specialist I saw a few weeks ago ordered it to see if the fibromyalgia is really just nerve damage due to spine changes from Marfan. Don’t get me started on the grief it took to get this scheduled, but for once it wasn’t the insurance company’s fault! Go figure!

Anyway, I just got off the phone with the scheduler and she said it will be sometime in JANUARY before I can get my next appointment, to even DISCUSS medication or physical therapy/acupuncture (which I’d prefer). My initial appointment was 4 weeks ago.

So…the pain clinic only lets you see them for 6 months, but the first HALF of that is spent waiting, which means I get maybe two visits after starting treatment to see the specialist. Seriously?!

I think I’m going to go cry in a hot shower now, then try to think up a Plan B.

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