Blogs:
Connective Tissue Disorders: My Journey
Living With Marfan
Marfan iWiki
Living With Marfan’s Syndrome
Tall Like the Sunflowers
Van Andel News
Resources:
Loeys-Dietz Syndrome Foundation
Luke Pier Foundation
NMF Connect
National Marfan Foundation
NMF News Blog
Roanne Weisman