Musings of a Marfan Mom

Marfan Awareness Month: Share Your Stories!

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February is “Have a Heart Month” for Marfan awareness. It’s a month that I know we in the Marfamily look forward to :-)

Many of you have guest-posted at various times, and I’ll be sharing those links on Facebook during the month of February. If you have not guest-posted before and would like to, I’m looking for the following types of stories to post next month: diagnosis stories, birth/surrogacy/adoption stories (that incorporate your diagnosis somehow), or celebration of life stories (sharing the story of a loved one who has passed away). You can write about yourself, if you are affected, or your child.

Please submit your posts to marfmom@gmail.com as soon as possible. Posts in any length or format (ex. – I’ve had poems submitted before) are acceptable. I welcome stories from related disorders as well (Loeys-Diets, Ehlers-Danlos, Beals/CCA, etc.). Please include a title and, if you feel comfortable, a photograph. I may edit for grammar and clarity.

Also, if you’re looking for other ways to spread the word about Marfan this month, check out the National Marfan Foundation’s toolkit!

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