Musings of a Marfan Mom

Marf of the (Mon)Day

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I’ve decided to do an occasional Marfan trivia day. I’ll provide a few clues as to the identity of a person who is reasonably believed to have/have had Marfan syndrome. I define reasonably believed as 1) multiple sources have stated the diagnosis, 2) the National Marfan Foundation has never said otherwise, and 3) the person in question has never disputed the diagnosis. (Read: Michael Phelps will never be featured here. He does NOT have Marfan and if you’re bored & want to hear my rant on that just ask, but I won’t take up space here today.)

So, see if you can guess who the Marf of the Monday is. Leave your guess in the comments, and I’ll post the answer on Wednesday!

Clues:
1) This Marf hailed from California.
2) She wore a size 12 sneaker.
3) By 17, she was 6’5’’.
4) She once said “You can go to school when you’re 60. You’re only young once, and you can only do this once.”
5) She was the University of Houston’s first female scholarship athlete.
6) This Marf appeared in a 1985 movie.
7) Her specialty move was the “Flying Clutchman.”
8 ) She was an Olympian.
9) She died from an aortic dissection, and her autopsy revealed she had survived a smaller tear a few weeks before.
10) She did NOT know that she had Marfan; the diagnosis was made during the autopsy.

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9 Comments

  1. I got this one!!! Flo Hyman – for whatever reason her story (and name) stick in my memory. Odd when virtually nothing else does. LoL You will have to tell me your opinion of the Micheal Phelps deal one day.

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  2. Yup, souds like Flo to me.
    I’m interested in your feelings about the Micheal Phelps thing also. I know he does NOT have Marfan Syndrome but I still find the whole thing interesting.

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    marfmom Reply:

    Hmmm…maybe I will just write a post about it for next Monday. How does that sound?

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  3. I’m thinking Flo too. Thank-you for not doing Abraham Lincoln LOL

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  4. Flo, definitely!

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  5. Flo. Of course its Flo.

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  6. I had no clue at all…. so I guess all of them are correct with Flo 😉

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  7. Michael Phelps DOES have Marfans.

    In the book “Michael Phelps: Beneath the Surface,” he says:

    “Fortunately everything was, and still is, okay. I have been tested once a year ever since at John’s Hopkins under the direction of Dr. Peter Roe, and the tissues are strong, the aortic route is clear and my heart is in good shape.”

    Marfan syndrome may present itself in many different ways, according to the Foundation’s Web site: Some patients are mildly affected and have only a few of these characteristics, while others are severely affected.

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    marfmom Reply:

    No, you’ve taken that quote out of context. Everything was ok as in he does not have Marfan. He spoke on this in interviews during the Olympics as well, explaining that he does not have Marfan.

    All Marfan patients have aortic disease or the potential for aortic disease (meaning they have a mutation that has been identified as causing aneurysms). So, while yes, some patients are more mildly affected than others, everyone has the risk for aneurysms and therefore it’s not safe to participate in the kind of training that he does. At worst case Phelps has MASS Phenotype, which carries no aortic risks.

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