Musings of a Marfan Mom

Live, from Conference (sort of)


If you’re seeing this post, it’s because the hotel Internet ended up being too outrageous for me to spend money on, considering I’m only in the room 12:30 am to 7:30 am. (Is it just me, or does it seem only fair that if you’re staying at a nice hotel, they provide you with wireless Internet for free since you’re already paying so much to stay there?) I wrote this at midnight Tuesday before leaving early the next morning for Houston and didn’t have time to write a fabulous post.

Anyway, know that I’m having a fabulous time! Last night was dinner for 30-40 of my friends at Chilis (a month or two in the coordinating). Today will probably be filled with shopping, swimming, and greeting everyone else as they show up (my mom included!) and the Professional Advisory Board reception. I’ll be tweeting as I can (assuming Mark’s phone accepts Uber Twitter again).

Don’t forget that Lebron James is announcing where he’ll be signing a contract tonight at 9 pm EST in a ONE HOUR SPECIAL on ESPN. Yes, yes the man has an ego. But, I hope he stays in Cleveland anyway.

Come back Monday for a really awesome guest post by one of the National Marfan Foundation’s teens!

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