Musings of a Marfan Mom

It’s All About the Shoes


There are some parts about Marfan syndrome that no matter how you spin it just are no good. Like our feet.

Most of us have huge feet. Narrow feet. Feet that were not made for shoes. In fact, now that my feet SHRUNK after having Menininho, I wear a shoe size that is not made by most shoe manufacturing companies; 10 1/2. I finally gave up, bought men’s sneakers for when I need to do a lot of walking and otherwise wear Old Navy flip flops.

So, when I found out Menininho didn’t have Marfan I was happy for his little feet. He would, I thought, have a life of careless shoe shopping from whatever store he wanted and for reasonable prices.

I forgot about my husband’s feet.

We affectionately refer to Mark’s feet as “hobbit feet.” They’re extra wide and all his toes are pretty much the same length. It’s kind of like his feet are bricks.

A few weeks ago we took Menininho to get his feet measured for new shoes. Lo and behold, he’s wearing a 4.5 XW. There is only ONE store that makes children’s shoes in an extra-wide, and it’s not just their sizing system because went to other stores and tried a size larger or a size larger in a wide and nope, still too tight. I’ve been trolling Ebay, Amazon, and Zappos looking for used shoes but nada. Time to buckle down and pay full price for a pair.

Apparently, if the shoe fits, the foot doesn’t belong to a member of our family. Poor Baby Smudge…s/he never even had a chance.

Be Sociable, Share!

Related Post


  1. I have really narrow feet but thankfully I wear a size 7 which is usually easy to find. As a kid though all the shoes were too wide for me and we had to have them special made at Stride-Rite and I guess that they were super expensive.

    But best of luck finding shoes for your family of people with interesting feet :) lol


  2. Oh, I hear you on this one. Shoes are a major source of angst for me (and for my daughter who has the same bone condition). I wear a standard size (6) but have a long list of qualities that make a shoe safe and comfortable: flat sole (no heel at all), good traction, no strap right over my left big toe which is in a weird position, good arches, either closely fitted or laced so I can tighten them properly, etc. etc. Flip flops and most sandals are out of the question. Needless to say, I usually end up buying the expensive brands at the local specialty shoe store. Then I have to spend $80 per pair to have a lift added to one shoe since one leg is shorter than the other. Shoes! Argh!


  3. Zappos is great, but I recently found out about
    They have a good selection with no sales tax, free and super quick delivery, and a price guarantee!


  4. Stopping from SITS! My son has little feet like my husband does. We lucked out, because children shoes for little ones are barely worn. We got a lot of consigned shoes from babies that couldn’t walk so the shoes had no wear.


  5. I don’t have any medical reason that I know of, other than being tall and big, but I wear a size 11W now, so I know what you mean about the scarcity of shoes (btw, how long post-pregnancy did it take for your shoe size to go down? – I’m wondering if I should toss my old shoes or hope I’ll fit back into them).

    Where did you find the baby shoes, for future reference. My son’s already 26 inches long and 14 pounds (at his 2 month appointment), with huge feet, so I’m guessing we may have trouble finding shoes & clothes for him as he gets older.


    marfmom Reply:

    Hmm I think I tried to buy a pair of shoes at 6 months postpartum and that’s when I noticed the change in size from 11 to 10 1/2. We found the baby shoes at Stride-Rite. Good luck! :-)


Leave a Reply

Required fields are marked *.