Musings of a Marfan Mom

Have You Ever…

| 4 Comments

…had an *implanted* lens dislocate?

…had surgery for pelvic prolapses (bladder, cervix, utuerine), especially more than one prolapse at once and/or while also having severe dural ectasia?

If you have and are willing to talk about it, please leave a comment or drop me an email. One of my Marfriends is dealing with both issues right now and is having a particularly difficult time finding a surgeon willing to repair her prolapses due to her dural ectasia. Please share these requests in your Marfan and related disorder networks and lets see if we can find her some advice!

Thanks!

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4 Comments

  1. My husband had THREE implanted lens dislocations. He’s not super into talking about his Marfan issues but she can definitely e-mail me–all three happened during the 5 months leading up to our wedding, so I was definitely there and involved.

    [Reply]

    marfmom Reply:

    Thanks!

    [Reply]

  2. Hi Maya,

    Both of my lens implants dislocated just after my 16th birthday. It took one surgery in my right eye and two in my left to properly re-attach them. I’d be happy to share.

    [Reply]

    marfmom Reply:

    Thank you!

    [Reply]

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