Musings of a Marfan Mom

Conference Time!!!


We’re heading out to Portland, OR on Wednesday morning for the 27th annual National Marfan Foundation conference (it will be my 6th)! Conference is always the highlight of my summer and I’ve been counting off the days for the past week.

If you’re at conference, please grab me and say hello! Leave a comment here if you’re planning to come.

While I’m gone, I’ll be re-publishing some old posts from 2-3 years ago. I hope you enjoy the flashback!

Be Sociable, Share!


  1. Have fun! Wish I could be there!


    marfmom Reply:

    Next year!!! :)


  2. How ironic! We too will be heading to Portland, Oregon on Wednesday morning. What are the odds? Can hardly wait to meet M3J!! (and everyone else) See you soon!!!


  3. Daniel, Alicia & I will see ya you when you get here. :-)
    I apoligize in advance that they decided to start construction to fix the road to the Hill THIS WEEK!!! Grrr


Leave a Reply

Required fields are marked *.