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Tag Archives: trips

August 17, 2009
by marfmom


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Speech

I was still editing this up until about a half hour before I had to give it, haha. Laurel’s mom got the whole thing on video, and that is on my Facebook (you may have to scroll down awhile on … Continue reading →

Categories: marfan | Tags: conference, marfan syndrome, NMF, trips | Permalink

August 16, 2009
by marfmom


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Slideshow

My dearth of recent posts is due to me working on this in all my free time: Teen Slideshow

Categories: marfan | Tags: conference, marfan syndrome, NMF, teens, trips | Permalink

August 10, 2009
by marfmom


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Teaser

Curious? Stay tuned for conference details!

Categories: marfan | Tags: conference, marfan syndrome, NMF, trips | Permalink

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