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Tag Archives: teens

July 28, 2011
by marfmom


7 Comments

2011 Conference Recap

It’s way past time for my conference recap! This was a bittersweet conference: many of my good friends and “regular” teens were missing, but I was able to meet a few friends in person whom I’ve been corresponding with online … Continue reading →

Categories: Uncategorized | Tags: conference, marfan syndrome, NMF, teens | Permalink

July 22, 2010
by marfmom


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Conference 2010, Part 3

Saturday we changed things up from our traditional teen group program. Teens had breakfast with Dr. Hal Dietz, who did a general Q&A as usual (yes, all you adults should be jealous!), but then we offered a selection of workshops … Continue reading →

Categories: Uncategorized | Tags: conference, marfan syndrome, NMF, teens | Permalink

July 21, 2010
by marfmom


6 Comments

My Teen Program Slideshow 2010

Here’s the slideshow that I spent so much time creating. Mark added the finishing touches, like synching everything perfectly

Categories: Uncategorized | Tags: conference, marfan syndrome, NMF, slideshow, teens, wordless wednesday | Permalink

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