I’ve got some exciting news this Marfan Monday!!! First of all, THIS WEDNESDAY you should tune in to The Doctors! Amy Yasbeck and Dr. Dianna Milewicz (the head of the National Marfan Foundation’s Professional Advisory Board) will be on the … Continue reading
Tag Archives: research
Support Ehlers-Danlos Syndrome Research!
Today I write on behalf of my friends with Ehlers-Danlos syndrome, a disorder related to Marfan syndrome. There are multiple types of EDS (affecting 1.3 million people worldwide) and NONE have real treatments available to them, let alone cures. One … Continue reading