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Tag Archives: research

May 13, 2010
by marfmom


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SIMA International Conference on Marfan Syndrome

This post is especially for my European readers. I know it’s a little late in the game, and I apologize for that! Tomorrow, May 14th, the Asociacion Sindrome De Marfan (SIMA) is hosting the first International Congress on Marfan Syndrome. … Continue reading →

Categories: Uncategorized | Tags: conference, marfan syndrome, medication, research | Permalink

May 3, 2010
by marfmom


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3rd Annual Marfan Symposium

The symposium this weekend was terrific! I love any excuse to get together with my Marfamily, you all know that, but the information was also fantastic and I learned a lot of new things. Dr. Liang, head of Stanford’s Clinic … Continue reading →

Categories: Uncategorized | Tags: advocacy, doctor, marfan syndrome, research | Permalink

April 19, 2010
by marfmom


5 Comments

Marfan Monday

It’s another hodgepodge of a Marfan Monday! First up, if you missed my Wordless Wednesday, I’m pregnant! I’m due at the beginning of December. Yes, you can expect a lot of pregnancy related posts now. I was so busy with … Continue reading →

Categories: Uncategorized | Tags: doctor, education, marfan syndrome, pregnancy #2, research | Permalink

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