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Tag Archives: pediatrician

January 18, 2010
by marfmom


13 Comments

Marfan Through a Mother's Eyes

Today starts a three-part series: Marfan Through the Eyes of the “Unaffected.” You’ve read my story, but what about how Marfan has affected those around me? Over New Years Mark, the baby, and I met one of my college girlfriends … Continue reading →

Categories: Uncategorized | Tags: activity restrictions, aorta, diagnosis, doctor, family, horseback riding, marfan syndrome, mom, pediatrician | Permalink

October 30, 2009
by marfmom


8 Comments

Neighborly Love?

I want to know what is wrong with people. Are we so connected online that we’ve stopped connecting in person? Is our “Me” culture so pervasive that we simply don’t care about each other anymore? Today, my son learned to … Continue reading →

Categories: Uncategorized | Tags: advocacy, baby, California, husband, pediatrician, trouble | Permalink

October 27, 2009
by marfmom


1 Comment

Small Blessings

I dreaded Menininho’s 9-month checkup yesterday. I was sure I’d get bad news. You see, I love baby wearing. I carried Menininho in a sling for months, and then transitioned to using our Ergo. Lately it’s been more and more … Continue reading →

Categories: Uncategorized | Tags: baby, baby wearing, marfan syndrome, pediatrician | Permalink

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