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Tag Archives: pain

December 21, 2009
by marfmom


9 Comments

Being an Empowered Patient

I’ve been thinking a lot about doctors these past few weeks.  I’ve had problems with a couple of them recently, particularly my pain doctor.  Her nurse doesn’t return calls for days, is sarcastic, and the doctor herself is unavailable and … Continue reading →

Categories: Uncategorized | Tags: doctor, fibromyalgia, marfan syndrome, pain | Permalink

December 9, 2009
by marfmom


17 Comments

An ER Headache

This is a post that is not a particularly cheery one, so be forewarned. Part of the purpose of this blog is to document the ins and outs of Marfan, and I feel that needs complete honesty. I’ve spent the … Continue reading →

Categories: Uncategorized | Tags: dissection, doctor, ER, husband, marfan syndrome, pain, trouble | Permalink

October 18, 2009
by marfmom


3 Comments

Pain(ful) Questions

I’m sitting here with a questionnaire 12 sheets thick, completely befuddled. I have a Masters degree…a Masters degree in public health, no less. I took a class on survey methods, love evaluation, used it in my culminating project for school. … Continue reading →

Categories: Uncategorized | Tags: doctor, fibromyalgia, marfan syndrome, pain | Permalink

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