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	<title>Musings of a Marfan Mom &#187; NMF</title>
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		<title>2011 Conference Recap</title>
		<link>http://marfmom.com/archives/3630</link>
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		<pubDate>Thu, 28 Jul 2011 07:54:29 +0000</pubDate>
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		<description><![CDATA[It’s way past time for my conference recap! This was a bittersweet conference: many of my good friends and “regular” teens were missing, but I was able to meet a few friends in person whom I’ve been corresponding with online &#8230; <a href="http://marfmom.com/archives/3630">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
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		<title>The Marfamily</title>
		<link>http://marfmom.com/archives/3621</link>
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		<pubDate>Wed, 27 Jul 2011 07:00:27 +0000</pubDate>
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		<title>Sarah &amp; Danny&#8217;s Story</title>
		<link>http://marfmom.com/archives/3382</link>
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		<pubDate>Wed, 25 May 2011 08:00:39 +0000</pubDate>
		<dc:creator>marfmom</dc:creator>
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		<description><![CDATA[Sarah is a good friend of mine, whom I met online. Her son Danny is adorable, as you&#8217;ll see below! I am very honoured to have been asked to post on Maya’s blog. Her help and support has been invaluable &#8230; <a href="http://marfmom.com/archives/3382">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
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		<title>Kaitlyn&#8217;s Story</title>
		<link>http://marfmom.com/archives/3365</link>
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		<pubDate>Wed, 25 May 2011 07:00:24 +0000</pubDate>
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		<description><![CDATA[Kaitlyn is one of the fabulous teens I have the privilege of working with. She currently serves on the Teen Council, a subcommittee of the National Marfan Foundation&#8217;s Board of Directors. My name is Kaitlyn, I am 16 years old, &#8230; <a href="http://marfmom.com/archives/3365">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
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		<title>Ben&#8217;s Story</title>
		<link>http://marfmom.com/archives/3358</link>
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		<pubDate>Tue, 24 May 2011 07:05:17 +0000</pubDate>
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		<description><![CDATA[Ben and I first met as teenagers at the 1997 National Marfan Foundation conference. The program was small then: just 15 of us. These days he &#38; I co-lead the teen program, which regularly sees 80-100 teens each year. “Look &#8230; <a href="http://marfmom.com/archives/3358">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
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