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Tag Archives: NMF

July 28, 2011
by marfmom


7 Comments

2011 Conference Recap

It’s way past time for my conference recap! This was a bittersweet conference: many of my good friends and “regular” teens were missing, but I was able to meet a few friends in person whom I’ve been corresponding with online … Continue reading →

Categories: Uncategorized | Tags: conference, marfan syndrome, NMF, teens | Permalink

July 27, 2011
by marfmom


0 comments

The Marfamily

Categories: Uncategorized | Tags: child with marfan, conference, marfan syndrome, NMF | Permalink

May 25, 2011
by marfmom


2 Comments

Sarah & Danny’s Story

Sarah is a good friend of mine, whom I met online. Her son Danny is adorable, as you’ll see below! I am very honoured to have been asked to post on Maya’s blog. Her help and support has been invaluable … Continue reading →

Categories: Uncategorized | Tags: child with marfan, guest post, NMF, severe marfan syndrome | Permalink

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