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	<title>Musings of a Marfan Mom &#187; flying</title>
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		<title>Airport Dry Run &amp; a Social Story</title>
		<link>http://marfmom.com/archives/3340</link>
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		<pubDate>Tue, 17 May 2011 07:54:14 +0000</pubDate>
		<dc:creator>marfmom</dc:creator>
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		<category><![CDATA[autism]]></category>
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		<description><![CDATA[Mark and I have been feverishly preparing for this weekend’s trip to Ohio. In addition to the general preparations like grabbing snacks and doing laundry, there is the matter of planning for the Menininho. He hasn’t been on a flight &#8230; <a href="http://marfmom.com/archives/3340">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
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		<title>Friday Favorites</title>
		<link>http://marfmom.com/archives/1807</link>
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		<pubDate>Fri, 12 Mar 2010 08:37:46 +0000</pubDate>
		<dc:creator>marfmom</dc:creator>
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		<category><![CDATA[feminism]]></category>
		<category><![CDATA[flying]]></category>
		<category><![CDATA[Friday Favorites]]></category>
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		<description><![CDATA[So many great posts this week, it was hard to narrow it down! Here are some of my favorites, in no particular order: If you’re a working mother, you MUST read the article To My Friends Who Work Outside the &#8230; <a href="http://marfmom.com/archives/1807">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
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		<title>A Hitch in McKenzie&#8217;s Plans</title>
		<link>http://marfmom.com/archives/1478</link>
		<comments>http://marfmom.com/archives/1478#comments</comments>
		<pubDate>Tue, 12 Jan 2010 09:31:25 +0000</pubDate>
		<dc:creator>marfmom</dc:creator>
				<category><![CDATA[Uncategorized]]></category>
		<category><![CDATA[baby]]></category>
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		<category><![CDATA[flying]]></category>
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		<category><![CDATA[marfan syndrome]]></category>
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		<description><![CDATA[McKenzie&#8217;s family hasn&#8217;t posted anything on her Facebook page, but I just read this article in the Tallahassee Democrat, which says McKenzie&#8217;s trip to Johns Hopkins for surgery has been put on hold indefinitely. She was supposed to fly out &#8230; <a href="http://marfmom.com/archives/1478">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
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		<slash:comments>4</slash:comments>
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		<title>McKenzie Update</title>
		<link>http://marfmom.com/archives/1471</link>
		<comments>http://marfmom.com/archives/1471#comments</comments>
		<pubDate>Sun, 10 Jan 2010 16:22:26 +0000</pubDate>
		<dc:creator>marfmom</dc:creator>
				<category><![CDATA[Uncategorized]]></category>
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		<category><![CDATA[flying]]></category>
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		<category><![CDATA[severe marfan]]></category>
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		<description><![CDATA[I wanted to let you know that McKenzie has got her plane and medical equipment! She and her parents are headed to Hopkins on Tuesday and she will have surgery about a week later. THANK YOU to everyone who has &#8230; <a href="http://marfmom.com/archives/1471">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
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		<title>Please Help McKenzie</title>
		<link>http://marfmom.com/archives/1466</link>
		<comments>http://marfmom.com/archives/1466#comments</comments>
		<pubDate>Fri, 08 Jan 2010 17:49:21 +0000</pubDate>
		<dc:creator>marfmom</dc:creator>
				<category><![CDATA[Uncategorized]]></category>
		<category><![CDATA[baby]]></category>
		<category><![CDATA[doctor]]></category>
		<category><![CDATA[flying]]></category>
		<category><![CDATA[marfan syndrome]]></category>
		<category><![CDATA[severe marfan]]></category>
		<category><![CDATA[surgery]]></category>
		<category><![CDATA[trouble]]></category>

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		<description><![CDATA[McKenzie is a 2 year old beautiful little girl with a very severe form of Marfan syndrome. I first met her mother, Jennifer, a few months ago via NMF Connect, a social networking site for people with Marfan syndrome &#38; &#8230; <a href="http://marfmom.com/archives/1466">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
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		<slash:comments>5</slash:comments>
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