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Tag Archives: diagnosis

May 22, 2011
by marfmom


4 Comments

Jess & Brody’s Story

I met Jess online, as Brody is not much older than Baby J. She shares her story of Brody’s diagnosis below. Brody was born on aug 13, 2010 after a stressful 24 hour delivery. Upon birth, the doctors noticed his … Continue reading →

Categories: Uncategorized | Tags: child with marfan, diagnosis, guest post, marfan syndrome, NMF | Permalink

August 9, 2010
by marfmom


1 Comment

New Diagnostic Criteria for Marfan, Part 3

This is part 3, the final portion, of my series on the new diagnostic criteria for Marfan syndrome. Here you can access the portions on the rationale for the revised criteria and the actual new criteria. Today’s post is on … Continue reading →

Categories: Uncategorized | Tags: diagnosis, marfan syndrome, NMF, research, revised Ghent Criteria | Permalink

August 5, 2010
by marfmom


2 Comments

New Diagnostic Criteria for Marfan, Part 2

This is part two of my post on dissecting (pun intended!) the new diagnostic criteria for Marfan syndrome. You can access part one, which discusses the reasons behind the updated criteria, here. I was going to put the new criteria … Continue reading →

Categories: Uncategorized | Tags: diagnosis, marfan syndrome, NMF, research, revised Ghent Criteria | Permalink

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