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Tag Archives: conference

March 21, 2011
by marfmom


2 Comments

It’s That Time of Year Again…

…..time to register for the National Marfan Foundation’s annual conference! Long time readers know this is one of my favorite parts of the year. To me, conference is a family reunion and Mark agrees, even as a relatively new member … Continue reading →

Categories: Uncategorized | Tags: conference, marfan syndrome, NMF | Permalink

February 24, 2011
by marfmom


2 Comments

Positive Exposure Documentary

I was going to write about toddler stomach flu today, but instead you can all thank your lucky stars that I noticed Rick Guidotti posted the trailer to the upcoming documentary On Beauty. I’ve talked about Rick here before. He … Continue reading →

Categories: Uncategorized | Tags: beauty, conference, documentary, marfan syndrome, positive exposure | Permalink

October 7, 2010
by marfmom


3 Comments

Guest Post

Today, you can find me over at the blog PhD in Parenting. Annie is a blogging idol of mine, so I’m incredibly honored that she asked me to write a guest post. If you’ve got a moment, please head over! … Continue reading →

Categories: Uncategorized | Tags: advocacy, conference, formula, guest post, pediatrician | Permalink

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