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Tag Archives: conference

July 13, 2011
by marfmom


6 Comments

Procrastination, Thy Name is Maya

We’re leaving at 7:30 am…. ….I should pack…

Categories: Uncategorized | Tags: conference, wordless wednesday | Permalink

March 21, 2011
by marfmom


2 Comments

It’s That Time of Year Again…

…..time to register for the National Marfan Foundation’s annual conference! Long time readers know this is one of my favorite parts of the year. To me, conference is a family reunion and Mark agrees, even as a relatively new member … Continue reading →

Categories: Uncategorized | Tags: conference, marfan syndrome, NMF | Permalink

February 24, 2011
by marfmom


2 Comments

Positive Exposure Documentary

I was going to write about toddler stomach flu today, but instead you can all thank your lucky stars that I noticed Rick Guidotti posted the trailer to the upcoming documentary On Beauty. I’ve talked about Rick here before. He … Continue reading →

Categories: Uncategorized | Tags: beauty, conference, documentary, marfan syndrome, positive exposure | Permalink

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