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	<title>Musings of a Marfan Mom &#187; conference</title>
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		<title>Last Call for NMF Conference Scholarships! (&amp; Other Important Info)</title>
		<link>http://marfmom.com/archives/4647</link>
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		<pubDate>Tue, 01 May 2012 14:14:36 +0000</pubDate>
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		<description><![CDATA[Today is the last day you can apply for a scholarship for this August&#8217;s National Marfan Foundation conference! These scholarships are only available to people in the United States and preference is given to those who have never attended a &#8230; <a href="http://marfmom.com/archives/4647">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
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		<title>Fundraiser for Sarah &amp; Danny</title>
		<link>http://marfmom.com/archives/4379</link>
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		<pubDate>Mon, 13 Feb 2012 05:23:11 +0000</pubDate>
		<dc:creator>marfmom</dc:creator>
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		<description><![CDATA[Today, I want to ask all of you for some help. Last spring, my friend Sarah guest posted her son Danny’s diagnosis story. Danny is a few months older than Baby J and is severely affected by Marfan syndrome. In &#8230; <a href="http://marfmom.com/archives/4379">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
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		<title>2011 in Review</title>
		<link>http://marfmom.com/archives/4293</link>
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		<pubDate>Sat, 31 Dec 2011 09:00:47 +0000</pubDate>
		<dc:creator>marfmom</dc:creator>
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		<description><![CDATA[As we prepare to say goodbye to another year, here&#8217;s a look back at some of the major events/favorite posts of 2011. January: January was a packed month. M had his 2nd IFSP meeting and Baby J had his first &#8230; <a href="http://marfmom.com/archives/4293">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
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		<slash:comments>6</slash:comments>
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		<title>2011 Conference Recap</title>
		<link>http://marfmom.com/archives/3630</link>
		<comments>http://marfmom.com/archives/3630#comments</comments>
		<pubDate>Thu, 28 Jul 2011 07:54:29 +0000</pubDate>
		<dc:creator>marfmom</dc:creator>
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		<description><![CDATA[It’s way past time for my conference recap! This was a bittersweet conference: many of my good friends and “regular” teens were missing, but I was able to meet a few friends in person whom I’ve been corresponding with online &#8230; <a href="http://marfmom.com/archives/3630">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
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		<slash:comments>7</slash:comments>
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		<title>The Marfamily</title>
		<link>http://marfmom.com/archives/3621</link>
		<comments>http://marfmom.com/archives/3621#comments</comments>
		<pubDate>Wed, 27 Jul 2011 07:00:27 +0000</pubDate>
		<dc:creator>marfmom</dc:creator>
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		<category><![CDATA[child with marfan]]></category>
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