Montage of a Marfan Mom

2009 in Review

It’s been a busy year in our household! Here are a few of the highlights:

January: I had just graduated from graduate school and was enjoying doing nothing but being pregnant. About halfway through the month I learned my delivery plans were going to change pretty drastically. My grandfather passed away after a long battle with cancer; his funeral happened while I prepped for my c-section.

February: At the beginning of the month we welcomed Menininho. It was a complicated post-delivery, one that I hope to never repeat. We moved to California and I made my first silly new mom mistake.

March: I learned of the losses of two Marfan friends. Menininho was blessed and formally given a name. Our family came to visit. Mark was diagnosed with Type 1 diabetes.

April: A pretty boring month, but I did blog about some of my baby “must haves”.

May: We started using cloth diapers and won’t go back! Mark officially graduated with his MS. I also had the stress test that started a chain of events.

June: Mark and I celebrated our 2nd wedding anniversary. I also started a series of posts about my life with Marfan.

July: My Life With Marfan posts continued and I prepared for the annual National Marfan Foundation conference.

August: Menininho and I flew solo to visit my mom and sister. I finished up the Marfan series and went to my 4th conference, where besides working with the teens I was also one of the closing speakers.

September: My cardiologist discovered a problem with my heart and I decided to wean Menininho early in order to start a new medication. A few weeks later Mark was diagnosed with Celiac disease.

October: We had a mishap at the pumpkin patch, and then better success. I moved my blog from Blogger to WordPress.

November: I relived some childhood memories with MamaKat’s Writers’ Workshop and we got to spend Thanksgiving in Ohio, seeing all of my and Mark’s extended families.

December: The inner breastfeeding advocate in me wrote a post about a woman’s right to breastfeed and the inner patient advocate in me wrote a post about being an empowered patient. We bought a tree, spent too much time in the ER and had a failed Christmas tradition.

I want to thank all of you who read my blog, who give me feedback. I am humbled that you take time from your day to read what I have to write. I look forward to getting to know more of you and your writings in 2010!

~ Maya

December 29, 2009   6 Comments

Christmas Eve

I love Christmas. I love the music. I love the crowded malls. I love the decorations. I love the FOOD. I love the traditions.

The best part about our first Christmas as a family of three was the opportunity to create new traditions for our family. Sure, it took some haggling (more than I expected) to figure out which of our respective family’s traditions we’d carry out this year for Menininho. Christmas Eve we’d drive to look at lights and open up our Christmas pajamas. Christmas morning we’d do stockings, read the Christmas story from Luke, eat our (this year, gluten free!) cinnamon rolls, sing a couple Christmas carols, and open presents.

But Christmas Eve I realized we had no Christmas Eve dinner tradition! For whatever reason this seemed totally unacceptable to me, and I pressed Mark about it. We decided that cheap Chinese takeout on the couch and It’s a Wonderful Life would be perfect. And really, this should be NO problem because we live within walking distance from a strip of Chinese restaurants.

We bundled up the baby and ventured out. Our only caveat was needing to find a restaurant that 1) didn’t use wheat in their soy sauce OR 2) had yummy dishes that used no soy sauce. Unfortunately, this was harder than we thought. For starters, I couldn’t convince Mark that it was probably easiest to ask “Does your soy sauce contain wheat?” than to ask “Do you have a gluten free menu?” A lot of people have no idea what gluten is, or may have gluten-less dishes and not know it, but not have a real gluten free menu (we’ve found most restaurants do NOT have such a menu). After about 10 restaurants it was obvious that no one understood what he was talking about, and we didn’t want to chance him getting sick.

Our backup plan was to drive to the mall, where we knew their Chinese restaurant used MSG in their soy sauce, instead of wheat. Unfortunately we realized AFTER we’d gotten Menininho into his shoulder and walked up from the back of the parking lot that the mall had closed 2 hours previous.

I ended up eating 2 cookies and a bowl of applesauce for dinner. I think Mark skipped it entirely. We’ll prepare better next year!

What are some of your holiday traditions? Did you start any new ones after you had kids?

December 28, 2009   7 Comments

It's Beginning to Look a Lot Like Christmas





December 16, 2009   4 Comments