The National Marfan Foundation has yet another resource for parents! They have just made available a short children’s book called Marfan Does Not Mean Martian. It was written by a middle school student named Elias Clark Turner for a biology … Continue reading
Tag Archives: advocacy
What We Don’t Talk About
I think many people, if not most, would agree that Saturday’s horrific events call for some serious discussion about political rhetoric in this country. I’d like to bring up another point of conversation that I think is long overdue and … Continue reading
A Realization and an Affirmation
This week has been, in a word, stressful. Yesterday I had my weekly non-stress test and amniotic fluid check and the nurse did that thing where she pretends everything is cool but you can tell it’s not because she keeps … Continue reading