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	<title>Musings of a Marfan Mom &#187; advocacy</title>
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		<title>To the Writers of Glee</title>
		<link>http://marfmom.com/archives/3996</link>
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		<pubDate>Wed, 21 Sep 2011 08:12:00 +0000</pubDate>
		<dc:creator>marfmom</dc:creator>
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		<description><![CDATA[Dear Writers of Glee, I love your show, I really do. My husband Mark even likes it, and we rarely agree on TV. Mark actually did showchoir in Northern Ohio and enjoys guessing which schools all the different teams are &#8230; <a href="http://marfmom.com/archives/3996">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
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		<title>Seeing My Sons</title>
		<link>http://marfmom.com/archives/3688</link>
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		<pubDate>Mon, 15 Aug 2011 08:52:45 +0000</pubDate>
		<dc:creator>marfmom</dc:creator>
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		<category><![CDATA[blogher 2011]]></category>
		<category><![CDATA[marfan syndrome]]></category>
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		<description><![CDATA[The Special Needs Mini Conference was a highlight of BlogHer. For those of you who have been to something similar (say, the NMF Conference), you’ll understand what I mean when I say that it’s lifesaving. Being with other people who &#8230; <a href="http://marfmom.com/archives/3688">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
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		<title>The Chess Match</title>
		<link>http://marfmom.com/archives/3056</link>
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		<pubDate>Mon, 28 Feb 2011 09:57:26 +0000</pubDate>
		<dc:creator>marfmom</dc:creator>
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		<description><![CDATA[I&#8217;ve got a pet peeve when it comes to Non-Marfs discussing Marfan syndrome. Yesterday morning I came upon a book review through my Google Alerts, where Marfan was the subject. There were many things I took issue with, like the &#8230; <a href="http://marfmom.com/archives/3056">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
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		<title>New Children&#8217;s Book</title>
		<link>http://marfmom.com/archives/2993</link>
		<comments>http://marfmom.com/archives/2993#comments</comments>
		<pubDate>Tue, 08 Feb 2011 08:01:17 +0000</pubDate>
		<dc:creator>marfmom</dc:creator>
				<category><![CDATA[Uncategorized]]></category>
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		<category><![CDATA[marfan syndrome]]></category>
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		<description><![CDATA[The National Marfan Foundation has yet another resource for parents! They have just made available a short children&#8217;s book called Marfan Does Not Mean Martian. It was written by a middle school student named Elias Clark Turner for a biology &#8230; <a href="http://marfmom.com/archives/2993">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
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		<title>What We Don&#8217;t Talk About</title>
		<link>http://marfmom.com/archives/2872</link>
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		<pubDate>Mon, 10 Jan 2011 19:32:26 +0000</pubDate>
		<dc:creator>marfmom</dc:creator>
				<category><![CDATA[Uncategorized]]></category>
		<category><![CDATA[advocacy]]></category>
		<category><![CDATA[crime]]></category>
		<category><![CDATA[healthcare]]></category>
		<category><![CDATA[mental illness]]></category>
		<category><![CDATA[schizophrenia]]></category>

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		<description><![CDATA[I think many people, if not most, would agree that Saturday’s horrific events call for some serious discussion about political rhetoric in this country. I’d like to bring up another point of conversation that I think is long overdue and &#8230; <a href="http://marfmom.com/archives/2872">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
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