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Tag Archives: advocacy

September 21, 2011
by marfmom


16 Comments

To the Writers of Glee

Dear Writers of Glee, I love your show, I really do. My husband Mark even likes it, and we rarely agree on TV. Mark actually did showchoir in Northern Ohio and enjoys guessing which schools all the different teams are … Continue reading →

Categories: Uncategorized | Tags: advocacy, autism, Glee | Permalink

August 15, 2011
by marfmom


12 Comments

Seeing My Sons

The Special Needs Mini Conference was a highlight of BlogHer. For those of you who have been to something similar (say, the NMF Conference), you’ll understand what I mean when I say that it’s lifesaving. Being with other people who … Continue reading →

Categories: Uncategorized | Tags: advocacy, autism, blogher 2011, marfan syndrome, special needs | Permalink

February 28, 2011
by marfmom


14 Comments

The Chess Match

I’ve got a pet peeve when it comes to Non-Marfs discussing Marfan syndrome. Yesterday morning I came upon a book review through my Google Alerts, where Marfan was the subject. There were many things I took issue with, like the … Continue reading →

Categories: Uncategorized | Tags: ableism, advocacy, marfan syndrome | Permalink

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